My biggest hope is that his appetite returns soon. Yesterday I worked all day just to get him to eat a few bites of food. It's exhausting. They started some IV nutrition but if he doesn't start eating soon I'm afraid that it will be a feeding tube next.
I know it sounds selfish - but I'm being honest here when I say that I just want to go home. I want to sit out in the sun and work in the dirt. I want to be around all three of my children and be with my husband. I know that the stem cell harvesting is coming up and next Friday will be admission for another 5 day stay. I'm starting to wonder just how much more of this hospital I can take - and yet I know just how much of this hospital is yet to come.
Edited to add: Doctors were just in and it sounds like we won't be released until Monday. I want to either scream or cry - ANOTHER Easter in the hospital. That will make 10 days in a row stuck at the hospital. With another 5 day stay coming up a few days after we are released. I'm frustrated right now.