Jacob's chest tube is now out and he is enjoying a peaceful afternoon nap. If the x-ray later this afternoon looks good we will be going home tomorrow morning.
Once the surgeon gives his okay, the oncologist will put together the treatment plan and start chemo (I am assuming sometime next week). The oncologist has spoken to me about the treatment plan - which will involve 16 weeks of chemo (5 days on - 3 weeks off), then Jacob's stem cells will be harvested. After they have a good amount of healthy stem cells, they will freeze them and start Jacob on some pretty hard core chemotherapy. His stem cells will then be reintroduced to him. At that point, we will probably be planning on a 4 week hospital stay. I'm not sure on the time line of the whole treatment and will know more once the plans are finalized.
I've been busy these past few days learning about how to care for his dual Hickman line. It's different then a port, which is under the skin, because it is two long tubes sticking from his chest. The difference is that the dual line can handle stronger chemo, which is why a port wasn't possible. The dual line involves a lot more care - hep locking once a day, dressing changes weekly (or when it gets wet). Looks like Jacob will have to put off swimming classes for another summer. I'm beginning to remember the vast amounts of medications, shots that he needed, blood transfusions, risks of infection, other risks. I start to feel sick, overwhelmed, scared, and mad.
And then I stop. I remind myself to take it one day at a time. I tell myself we gotta do what we gotta do.
Proverbs 3:5-6: "Trust in the LORD with all your heart and lean not on your own understanding; in all your ways submit to him, and he will make your paths straight."
Philippians 4:6-7 "Do not be anxious about anything, but in every situation, by prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus."
Philippians 4:13: "I can do all this through him who gives me strength."
We can do this.