It isn't right that a 5 year old boy has to go through this journey.
Tonight I have had to dwell on some tough decisions. Get the flu vaccination so close to him starting chemo and needing another dose in a month when his body has such a low immunity? Enroll him in a clinical study of Wilm's Tumor that may help, or hinder, his battle? There are no easy answers...and I don't have a clue tonight. I'm exhausted and overwhelmed and don't want to have to make decisions right now.
We are still in the hospital. This is day 9. Luckily, they did take the chest tube out today and we *may* get to go home tomorrow. The best news? The pathology reports show it is Favorable History Wilm's Tumor, which is the "good" kind. Much better statistics with this...70-80% at stage 4.
The overwhelming news? It looks as though he may be starting radiation (and possibly chemo) this Thursday...just two days away. We may be going home tomorrow but we will be back on Thursday. And Friday. And Monday...and so on. He will be having six days of radiation. The chemo will start for six weeks (once a week on an out-patient basis) and then they will check and see how it is progressing. Then maybe another 6-8 months of it. So once we get home we will still need to drive back and forth (we are 2 hours from the hospital) for the next week, and then weekly after that.
I ask for prayers this evening for me to have some answers and peace about the two topics above that I still am not decided on. I plan to sleep on it and hope to wake up with an answer. Tomorrow morning will also mean more scans with the radiologists to pinpoint the treatment, another meeting with the oncologist, and hopefully some discharge papers.